Janelly Martnez-Amador was given the gift of life just when doctors had prepared her parents for what the doctors believed was inevitable. The adorable little girl was born with a severe form of hypophosphatasia, a genetic disorder that prevents skeletal mineralization. When things looked hopeless, a clinical trial of a new drug turned her situation around.
Nurses prepared Janelly for a photo session at the hospital, removing her tubes and dressing her in a cute pink outfit so that her parents could have a keepsake of their baby girl without all the medical equipment that was sustaining her life. Janelly’s rare form of hypophosphatasia meant that she didn’t have the ribs to support breathing, and her parents were faced with the decision of continuing life-sustaining intervention, or letting their little girl go.
“I was told that what’s going to happen is going to happen, and there’s no point in trying to prevent anything.”
Amanda Geier said this was the medical advice she received regarding her daughter Samantha, who has spina bifida. After hearing the medical opinion, Geier took on a different attitude than what had been suggested. She says, “You learn to fight for your kid to be able to do things she wants to do.”
Samantha Geier has a condition known as spina bifida, which happens when the spinal cord or the vertebrae surrounding it do not correctly or completely form, which results in damaged nerves and muscle weakness. Samantha received her first operation when she was just six weeks old at the Rady Children’s Hospital in San Diego. Now she is 16 years old and has had a number of surgeries.
Sometimes the most powerful way to find the motivation you need to get over life’s hurdles is to learn about others who have overcome incredible odds to find success. It doesn’t even have to be someone in your profession or someone with the same goals that you have. Because in the end, we all face the same variety of challenges in one form or another — presence of fear, lack of opportunity, physical or mental health limitations, financial setbacks — and we’re all trying to find a way to beat the odds.
So, today’s post is designed to give you that motivation — no matter what your goal in life is and no matter what your personal challenges might be — by learning more about those who have succeeded in the face of remarkable odds. You can learn a lot from these 5 stories of people with physical disabilities who rose to the top of their chosen professions by adapting to their environment and never giving up. Consider their stories, apply them to your own life, and perhaps you can turn your difficulties into a story of success. Continue reading
Valentine’s day is right around the corner, and we want to talk about how accessible we think dating can be!
With these easy steps, you can find a date and impress them with a fun-filled night! Continue reading