Tag Archives: fundraising

Boy Fights Duchenne Muscular Dystrophy by Summiting Kilimanjaro

Tyler Armstrong, an 8-year-old boy from Yorba Linda, California, became the second youngest person to reach the top of Mt. Kilimanjaro. Tyler and his team climbed from June 25th through July 2nd, not for the fame of completing the task at such a young age, but instead to raise awareness and funds for Duchenne muscular dystrophy (DMD).

Tyler Armstrong Hiked Kilimanjaro for Duchenne Friends

“I did it! I climbed to the top of Mt. Kilimanjaro for my friends Hawken, Suhail, and Wil and the other boys with Duchenne who can’t climb,” exclaimed Tyler.

Duchenne impacts 300,000 boys worldwide, and the disease is the most common and lethal form of muscular dystrophy. Most boys with Duchenne are diagnosed by age 5, are using a wheelchair by age 12, and the vast majority do not survive pas their mid-20s.

Tyler and his team, CureDuchenne’s Hawken’s Heroes, summitted at 3:30am on July 1st. Tyler needed a little help with the last 1,000 feet due to the altitude, but he made it to the top.

“It was cool to be on top of Mt. Kilimanjaro,” he said. “It would be even cooler if they could find a cure for Duchenne. We need everyone’s help to find a cure. CureDuchenne needs money to help save boys’ lives.”

“It was amazing to reach the summit of Mt. Kilimanjaro led by a courageous young boy with a big heart,” said Paul Miller, co-founder of CureDuchenne, who climbed alongside Tyler. “Tyler helped us reach new heights on the mountain just as we are reaching new heights in the research to find a cure for Duchenne.”

CureDuchenne is a non-profit that funds research into treatments and cures for Duchenne. The climb was coordinated through Climb to CureDuchenne, and the funds will be used to support the most promising research projects that aim to treat and cure Duchenne. Tyler is hoping to raise $19,341, which is a dollar for every foot he climbed.

Sources:
marketwatch.com/story/tyler-armstrong-8-summits-mount-kilimanjaro-to-cure-duchenne-muscular-dystrophy-2012-07-02
topwithtyler.com

Image source:
facebook.com/TopWithTyler

Man raises $600,000 on Streetcorner for People with Disabilities

muki

Michael Baum, otherwise known as “Muki,” has raised over $600,000 for people with disabilities by on passers in Toronto. You can find him with his paint can and a sign hung on his red mobility scooter which reads, “I was born with cerebral palsy and deafness, but I want you to know that I am a person not a disability.”

The sign on his mobility scooter indicates the love and support he has received from his parents whom were told by his doctor he should be in an institution and all he would be was a burden upon them. Ignoring the doctors opinion, his parents chose to raise him with love and help him become who he is today.

Baum has spent nearly 20 years raising money by collecting change and small bills on street corners. Most people find him familiar on Bloor St. W. and outside Holt Renfrew. On a good day of fundraising, he can collect around $100, on his best day he made over $650 – Thanksgiving Day 2008.

He says if he had a million dollars, he’d buy a building for children with disabilities. His mother asked him by mouthing the words slowly if he really thought he could raise that much money. Of course Muki replied, “Yes!” with a huge smile igniting his face. Muki believes one day he can earn one to two million dollars!

Muki’s mother Dr. Nehama Baum says, “Muki found his destiny fundraising.”

Dr. Baum founded the non-profit organization, “MukiBaum Treatment Centres” dedicated for people with developmental and emotional disabilities. The facility is located on Samor Rd., and the building was partially funded by the money Muki raised.

Muki communicates by using lip reading, sign language, and a type-and-talk keyboard, but he hasn’t let that hinder him one bit. Since his achievements, he has been recognized with a good citizenship medal from the province.

“He is an unbelievable man who makes a big difference in this world,” stated Ruth Conlin, a previous employee at Holt Renfrew’s cosmetic departments.  Outside the building or inside, Muki can quite often be found with his paint can.

“What makes him happiest is knowing that his work helps other children and adults with disabilities reach their potential,” says his mother.

Wheelchair Vans for Sale

Funding a Wheelchair Van with a Unicycle and a Firetruck

You might see something unusual on the side of the road on Saturday if you live around Atlanta, GA.  Bill Mueller will be riding a unicycle 100 miles in efforts to raise money to buy a new wheelchair van for his brother, Gary Mueller, a retired firefighter for over 20 years who was paralyzed from the chest down in March 2009 when he fell off the two-story back deck of his home.  AMS Vans has contributed a $5,000 discount towards the price of the wheelchair van as our pledge to help Gary and his brother in their fundraising.

On Thursday, firefighters traveled from Cape Coral, Florida to Atlanta, GA in a classic 30 year old restored American LaFrance fire truck to raise awareness of the website supporting the cause: www.RideForGary.com

“There’s so much attention that I get when I’m riding it,” he said. “I thought this would be a great way to raise money.”

Bill was right.  The website has so far generated $3,000 by allowing people to sponsor the unicycle ride by the mile, and the Cape Coral firefighters raised $3,000 on their own towards the effort.  A car wash was thrown by supporters that raised $600, and a man donated a new scooter that will be sold online to raise more funds.  T-shirts will also be available at the event for $20 to bring in extra funding.

“This is a guy that has been a friend to us for over 20 years, and we’re just looking to help him out and take care of him,” said Lt. Ken Retzer of the Cape Coral Fire Department. “He’s a fellow brother of the fire department.”

The Cape Coral firefighter group will also be following behind Gary in their restored firetruck as he rides his unicycle on Saturday from fire station to fire station to generate more interest for the event along the route.  They are heading out at 7 am from a firestation in Gainesville, GA and will be making stops at fire stations through Hall, Gwinett, DeKalb, and Fulton counties.

“The intent is to buy the van, but the motivation is to help Gary regain his independence,” Retzer said. “This is just a shot in the arm to turn the page in his life. We have no plans on quitting before this goal is met.”

Since leaving the hospital, Gary Mueller’s wife, Mary Ann, has been taking care of him along with his brother. Gary is unable to remember what he was doing prior to his fall, but his family believes he may have been filling bird feeders.

“It was pretty serious,” Bill Mueller said of the accident.

He added that the fund-raiser has changed his brother’s disposition.

“It almost completely turned around his attitude,” Bill Mueller said. “His spirits are great.”

A pre-event party will be held at 8 p.m., Friday, at Engine 11, a restaurant and bar in Atlanta that once was a working firehouse. Following Bill Mueller’s ride Saturday, an after-event party will be held at Engine 11 beginning at 9 p.m.