Stevie Pearson, a 19-year-old soccer player from the U.K. is asking locals to back the Muscular Dystrophy Campaign’s fundraising events on February 29th. This leap year, the organization will be holding a variety of fundraising events to fund research and cures for Duchenne muscular dystrophy.
Duchenne muscular dystrophy is a genetic condition that causes muscle waste over time. Children–all boys–born with this condition develop and learn to walk, only to have their muscles begin to deteriorate. By age 12, most children with Duchenne muscular dystrophy lose the ability to walk. By the late teens, the condition becomes life threatening, as muscles around the chest and heart waste away.
Stevie Pearson attends West Herts College and just recently returned from Paris, where he won the silver medal while competing with England’s powerchair soccer team at the World Championships. When asked about his condition, Stevie replied by saying, “Living with muscular dystrophy brings difficult challenges every day, but I try not to let it hold me back.”
In hopes that others will go the extra mile, the Muscular Dystrophy Campaign is holding some unusual fundraising events. One of the most challenging events involves 100 recruits making a 10,000-foot skydive. The number was chosen to recognize the 100 children born each year in the U.K. with Duchenne muscular dystrophy.
Employers in Hertfordshire are also being asked to raffle off a day’s paid vacation leave. To enter, employees will donate five pounds to the Campaign for a chance to win. The Muscular Dystrophy Campaign has been providing funds for research into treatment and cures of MD for over 50 years.The London and Hertfordshire Fundraising Manager for the Muscular Dystrophy Campaign made a plea to the local community.
“Anybody can get involved and make the extra day count this year by holding a fundraising event and helping us to fund vital research, which could change the lives of hundreds of people across Hertfordshire,” stated Laura Watts, the Muscular Dystrophy Campaign’s London and Hertfordshire Volunteer Fundraising Manager. “By taking on the challenge of a life-time and jumping out of a plane for us, persuading the boss to raffle off a day’s annual leave, or even organizing an event for friends and family on February 29, you will be help to support people like Stevie by taking us one step closer to a cure for muscular dystrophy.”