Tag Archives: spinal cord injury awareness

silhouette of woman in a wheelchair looking at a sunset

September is Spinal Cord Injury Awareness Month

September is National Spinal Cord Injury Awareness Month and to help raise awareness, we put together a list of helpful resources and support groups for our friends and customers with spinal cord injuries (SCI). These resources are also helpful for families, loved ones, therapists, caretakers – and for anyone looking to contribute to a worthy cause.

National Resources for People with Spinal Cord Injury

Christopher and Dana Reeve Foundation

One of the most well-known organizations for SCI, the Reeve Foundation was founded in 1999 and is dedicated to finding a cure for spinal cord injury by funding innovative research and offering services that improve the quality of life for those living with paralysis. Further, they provide resources on health, rehabilitation, costs, and insurance, and funding to nonprofits that serve the disability community.

Website: https://www.christopherreeve.org
Contact: 800-539-7309

United Spinal Association

A national 501(c) (3) nonprofit membership organization, United Spinal is dedicated to enhancing the quality of life of those living with spinal cord injuries and disorders. United Spinal transforms the lives of people with SCI/D by:

  • Advocating for greater access to healthcare, mobility equipment, public transportation, rehabilitation, community services and supports, and the built environment
  • Empowering our members with resources, one-on-one assistance, and peer support
  • Promoting independence through employment opportunities and community integration of wheelchair users into mainstream society

Website: https://unitedspinal.org
Contact: 718-803-3782

Miami Project to Cure Paralysis

The Miami Project to Cure Paralysis was founded in 1985 with the help of Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti after Nick’s son, Marc, sustained a spinal cord injury during a college football game.  The Miami Project is a Center of Excellence at the University of Miami Miller School of Medicine.  It is considered the premier investigative research program conducting cutting edge discovery, translational, and clinical investigations targeting spinal cord and brain injuries.

Website: https://www.themiamiproject.org
Contact: 305-243-6001

Travis Roy Foundation women smiling playing wheelchair basketball

The Travis Roy Foundation is dedicated to enhancing the life of individuals with spinal cord injuries and their families by providing adaptive equipment and to finding a cure through increased funding of research, resulting in self-reliance and the ability to be as independent as possible. Half of the money raised by the Travis Roy Foundation goes toward Quality of Life grants to purchase adaptive equipment to help paraplegics and quadriplegics live their lives.

Website: https://www.travisroyfoundation.org
Contact: info@travisroyfoundation.org

Triumph Foundation

Triumph Foundation is a 501(c)(3) non-profit organization whose mission is to help children, adults, and Veterans with Spinal Cord Injury/Disorder (SCI) to triumph over their disability and to inspire them to keep moving forward with their lives by pushing themselves to get better every day. Triumph Foundation works to minimize the obstacles that one faces after suffering traumatic injury.

Website: https://triumph-foundation.org
Contact: 661-803-3700

Shepherd Center’s Spinal Cord Injury 101

Videos developed by Shepherd Center, that use simple language and images of real people who have sustained a spinal cord injury, as well as medical experts and advocates. They also offer general information about SCI and TBI.

Website: www.spinalinjury101.org
Contact: 404-352-2020

SpinalCord.com

SpinalCord.com was started by Swope, Rodante P.A. to be a resource for SCI survivors and their families. Get access to more resources, such as information about new injuries, doctor/treatment centers, and legal or financial aid.

Website: https://www.spinalcord.com
Contact: 877-336-7192

Paralyzed Veterans of America

Founded in 1946, Paralyzed Veterans of America (PVA) is involved in research, resources, and legislation concerning spinal cord injuries. PVA also sponsors sporting events and programs such as the National Veterans Wheelchair Games. PVA will use their expertise to be the leading advocate for:

Website: https://www.pva.org
Contact: 800-424-8200

Spinal Cord Injury

Facebook Peer Support Groups for SCI

Often, the best way to find resources and support for SCI is to connect with others who are sharing a same or similar experience. Many communities have in-person groups where people can meet one another, but there are also opportunities to get lots of great information and some camaraderie, too, virtually with Facebook Groups. See some popular options below (click to visit).

Fundraising with Help Hope Live

We understand that sometimes, with spinal cord injury, the biggest obstacle to mobility freedom is the cost of products, technology and medical services. That’s why we partnered with Help Hope Live; to connect our community with a fundraising option to purchase the wheelchair accessible vehicle that they need.

Help Hope Live is the leading community-based fundraising platform for people with unmet medical expenses due to catastrophic injuries or illnesses. They provide the following support and advantages throughout the fundraising campaign:

  • One-on-one fundraising help
  • Customizable Campaign Page
  • Bill pay support
  • Additional benefits based on their nonprofit status, including tax deductible donations

Learn more about Help Hope Live and get started here.

AMS Vans is a leading advocate of mobility freedom for persons living with spinal cord injury, and one of the largest providers of wheelchair-accessible vehicles in the country. We offer low prices on quality mobility vehicles, affordable short- or long-term handicap van rentals, mobility equipment sales with installation, and trade-in opportunities for your current adaptive or unmodified vehicle. Explore our inventory or call us at 1-800-775-8267.

Caring for Disability Family Events

Spinal Cord Injury Awareness Month

September is National Spinal Cord Injury Awareness Month. 17,000 new cases of Spinal Cord Injuries are documented every year in the US alone; in this country today, 200,000 people live with a spinal cord injury (SCI), and someone is paralyzed every 48 seconds.
 
48 seconds and a life is forever changed. Parents, daughters, college athletes, up and coming Marine Corps officers, co-workers, the person sitting next to you in traffic– SCI shows no partiality to where someone is in life or where they want to be headed.
 
Vehicle accidents are at the top of the list when it comes to leading causes of SCI, but other causes include: falling, sport injuries, or acts of violence.
 
In the past year, 19 customers have purchased a wheelchair van from AMS Vans due to a spinal cord injury.
 
The United Spinal Association is, however, fighting for the lives of those living with spinal cord injuries; they believe in obtaining affordable medical equipment and insurance, housing, transportation, ways that people with SCI can live independently, and numerous other benefits that can be reached through donations and awareness.
 
Of course, funds and awareness will also help fuel the big over-arching goal: medical research and scientific findings.
 
To learn more about Spinal Cord Injuries, SCI Awareness Month, and ways to get involved or donate, check out https://www.unitedspinal.org/september-is-national-spinal-cord-injury-awareness-month-2/.