September is National Spinal Cord Injury Awareness Month and to help raise awareness, we put together a list of helpful resources and support groups for our friends and customers with spinal cord injuries (SCI). These resources are also helpful for families, loved ones, therapists, caretakers – and for anyone looking to contribute to a worthy cause.
National Resources for People with Spinal Cord Injury
Christopher and Dana Reeve Foundation
One of the most well-known organizations for SCI, the Reeve Foundation was founded in 1999 and is dedicated to finding a cure for spinal cord injury by funding innovative research and offering services that improve the quality of life for those living with paralysis. Further, they provide resources on health, rehabilitation, costs, and insurance, and funding to nonprofits that serve the disability community.
United Spinal Association
A national 501(c) (3) nonprofit membership organization, United Spinal is dedicated to enhancing the quality of life of those living with spinal cord injuries and disorders. United Spinal transforms the lives of people with SCI/D by:
- Advocating for greater access to healthcare, mobility equipment, public transportation, rehabilitation, community services and supports, and the built environment
- Empowering our members with resources, one-on-one assistance, and peer support
- Promoting independence through employment opportunities and community integration of wheelchair users into mainstream society
Miami Project to Cure Paralysis
The Miami Project to Cure Paralysis was founded in 1985 with the help of Barth A. Green, M.D. and NFL Hall of Fame linebacker Nick Buoniconti after Nick’s son, Marc, sustained a spinal cord injury during a college football game. The Miami Project is a Center of Excellence at the University of Miami Miller School of Medicine. It is considered the premier investigative research program conducting cutting edge discovery, translational, and clinical investigations targeting spinal cord and brain injuries.
Travis Roy Foundation
The Travis Roy Foundation is dedicated to enhancing the life of individuals with spinal cord injuries and their families by providing adaptive equipment and to finding a cure through increased funding of research, resulting in self-reliance and the ability to be as independent as possible. Half of the money raised by the Travis Roy Foundation goes toward Quality of Life grants to purchase adaptive equipment to help paraplegics and quadriplegics live their lives.
Triumph Foundation is a 501(c)(3) non-profit organization whose mission is to help children, adults, and Veterans with Spinal Cord Injury/Disorder (SCI) to triumph over their disability and to inspire them to keep moving forward with their lives by pushing themselves to get better every day. Triumph Foundation works to minimize the obstacles that one faces after suffering traumatic injury.
Shepherd Center’s Spinal Cord Injury 101
Videos developed by Shepherd Center, that use simple language and images of real people who have sustained a spinal cord injury, as well as medical experts and advocates. They also offer general information about SCI and TBI.
SpinalCord.com was started by Swope, Rodante P.A. to be a resource for SCI survivors and their families. Get access to more resources, such as information about new injuries, doctor/treatment centers, and legal or financial aid.
Paralyzed Veterans of America
Founded in 1946, Paralyzed Veterans of America (PVA) is involved in research, resources, and legislation concerning spinal cord injuries. PVA also sponsors sporting events and programs such as the National Veterans Wheelchair Games. PVA will use their expertise to be the leading advocate for:
- Quality health care for their members
- Research and education addressing spinal cord injury and dysfunction
- Benefits available as a result of members’ military service
- Civil rights and opportunities that maximize the independence of their members
Facebook Peer Support Groups for SCI
Often, the best way to find resources and support for SCI is to connect with others who are sharing a same or similar experience. Many communities have in-person groups where people can meet one another, but there are also opportunities to get lots of great information and some camaraderie, too, virtually with Facebook Groups. See some popular options below (click to visit).
- Spinal Cord Peer Support USA
- You Are Not Alone – Dealing with Spinal Cord Injury
- Spinal Cord Injury Support Group
- Spinal Cord Injury Rehabilitation and Recovery
- Disabled Resources – Spinal Cord Injury
- Spinal Cord Injury USA
Fundraising with Help Hope Live
We understand that sometimes, with spinal cord injury, the biggest obstacle to mobility freedom is the cost of products, technology and medical services. That’s why we partnered with Help Hope Live; to connect our community with a fundraising option to purchase the wheelchair accessible vehicle that they need.
Help Hope Live is the leading community-based fundraising platform for people with unmet medical expenses due to catastrophic injuries or illnesses. They provide the following support and advantages throughout the fundraising campaign:
- One-on-one fundraising help
- Customizable Campaign Page
- Bill pay support
- Additional benefits based on their nonprofit status, including tax deductible donations
AMS Vans is a leading advocate of mobility freedom for persons living with spinal cord injury, and one of the largest providers of wheelchair-accessible vehicles in the country. We offer low prices on quality mobility vehicles, affordable short- or long-term handicap van rentals, mobility equipment sales with installation, and trade-in opportunities for your current adaptive or unmodified vehicle. Explore our inventory or call us at 1-800-775-8267.